Let me start by saying that if anyone says "this too shall pass" I will turn you into a bug, and put you in a box, then i'll put that box in another box, then i'll mail that box to myself and SMASH IT WITH A HAMMER!!!! OK let's get on with it.
em wont swallow anything. When i say anything i mean not even her spit. Over that last two weeks i have watched my little villain deteriorate before my very eyes. At first i thought she was just being stubborn. she is after all very good at that. but as she got worse day by day the fear set in. something is wrong. better yet, something is wrong and no body knows what. as a parent this is unacceptable to me. i have only been in this situation once before. I personally believe someone shouldn't have to go through this more then once in a life time. i felt like it aged me like ten years. so, after this one i guess i will look closer to 50.
So, since they have no idea what it is, we have a whole set of tests to do. Swallow study next tuesday (this one scares me the most), then an MRI, then our #10 specialist Nephrology. After that i figure they will ask for a scope of her throat. Not sure why they aren't doing that now. I seriously should get a medical degree for all this. we also did a blood draw yesterday for food allergies. The reason we have a #10 is because she still has Acidosis. Once again, no one knows why.
i am really not good at waiting. i mean really, really not good. let's hope for Em's sake that my lack wont keep her sick. i am a girl that needs a plan. i am good at following plans. we're friends.
on an upside, which also has the doctors scratching their heads, Em is talking a TON. real words and everything!