the part about this whole ordeal that stresses me the most is the fact that she has lost a pound. which means we are 1.5 pounds behind our goal for her to gain enough wait to repair her ASD by catheter this fall. so... the surgery is pretty much out of the question. unless her surgeon decides that if we are close then they can do it. i'm not holding me breath. well, not for that.
even though this week has been rough at least it was rough at home and not the hospital. thank goodness for the g-tube. it worked great as an at home IV.
i have been reading random people's blogs lately and i found one written by a mom who has a child with alot of medical issues. something she said made me chuckle in agreement.
"My child will probably live to be 150 and i'll probably die young from an [emmeline] induced heart attack." so true.