I would wake up at the crack of dawn to make sure I got to the hospital before rounds, desperate to talk to the doctor and get more immediate control and input on what would happen next for my child. As I left, I would grab breakfast from the kitchen (usually 2 rolls leftover from the previous nights dinner) and walk as fast as I could to Emmeline's room. There she would be in a new adorable outfit looking so small.
I made some very tough decisions during that stay, some great and some I regret. The one I hated the most happened 6 years ago today. Her g-tube. Don't get me wrong, they can be amazing and life saving for some but I HATED IT. Every second of it. My daughter has had many surgeries but that was the only one where I sat in the waiting room crying wanting to storm the OR and grab her off the table. As we all know, I didn't, and we made it thought it. But I still hated it. So much.
Here she is post op and her first halloween so of course I dressed her up. Pretty cute little bee :)