In Less Than A Heartbeat

My internet/Facebook perusing occasionally comes across and article or post about the parent of a child who has special needs.  In quite a few of these articles I notice the phrase "I wouldn't have it any other way".  On the face of it it seems cool.  That the parent would actually choose this and that they wouldn't want something different.
Here's the thing.  I would change it.  I would make my daughter's DNA normal.  I would wish these trials away from her.  Faster than you could blink.  Her life is hard.  Much, much harder than it should be.  She has been through more then most people could even imagine and she is only 5.  She hasn't even gotten to the normal hard stuff yet.  I would let her ear.  I would let her run.  I would let her be able to balance so she can play like an average 5 year old.  I would let her speak with ease.   I would let her do this and so much more.
Some might say that I don't love my daughter for who she is.  On the contrary, I don't think my daughter's disability has anything to do with who she is.  She would be amazing either way.  Whether she had CHARGE or CP has no affect on that. She's Emmeline plain and simple.  I just wish...


Brittany H. said...

YES! As hard as life seemed for us at the time, I miss Claire being little--we were in a bubble of some things not mattering as much because of her age. I don't like to think about the future because of all the outside factors that will no doubt negatively affect the situation. Whenever Kevin or I wish for something, we usually take it back right after and say, Well if we're going to wish for something let's go big! Why just wish for Claire to understand what I'm saying? I'm not wasting a wish on just that! Loved your comment on how wishing for Em to be whole doesn't mean you love her less. So so true.

Terra said...

I often forget she has so many challenges because she such a rock star at life. Emmeline is Emmeline, but title would be for her if she didn't have to work so hard.